Talking with my doctor
talking with my doctor
1. Expect to be there a long time. Dysautonomia cases are complex and require more time to diagnose. Find chairs that can be pulled together so you can prop your legs up if needed.
2. Understand that the doctor may have limited knowledge about dysautonomia. Sometimes, the patient has learned more about it than the doctor. Be respectful of the doctor’s knowledge/position while also being your own advocate and voice.
3. Be prepared to give a thorough but quick summary of your history and the symptoms in multiple organ systems. Give the doctor the patient history forms with your notes if needed.
4. Be prepared to be referred to other doctors and specialists. Ask about their level of awareness and if they have treated Dysautonomia patients before.