Dysautonomia Patient Story 02/2020

Hello everybody, welcome to the third TDP Patient Story blog. This month’s patient is a female who lives in Connecticut. She has been diagnosed with POTS, EDS, Asthma, Eczema. Daily, she endures commons symptoms of dysautonomia-difficulty standing for long periods of time, brain fog, lightheadedness, migraines, nausea, fainting, maintaining homeostasis through body temperature, and more.

The patient is a mother of three teenagers. In order for the patient to leave her home, she must use a wheelchair or rollator. She counts her blessings though, like being able to go to the bathroom by herself. She had a friend who had a hip replacement recently and gave the patient a bracelet with the words “One day at a time” inscribed onto it. She makes sure to gives this advice to every dysautonomia patient she encounters. A note from the patient about the quote is, “With POTS that’s all you can do because one day may be terrible and I won’t leave my bedroom but the next day may not be so bad.”

She, among many other patients, believes that education is one of the most helpful forms of treatment. Having doctors that are aware of her condition and loved ones checking in on her gives her hope. She has listed Midodrine and Propranolol as medicines that have greatly aided her journey with migraines.

The mission of The Dysautonomia Project is to educate healthcare professionals, patients and communities about dysautonomia. Stay tuned each month for a new case study!

-The Dysautonomia Project Team

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