Our team is dedicated to helping healthcare professionals, patients and communities learn about dysautonomia. We are extremely grateful for all that they do!
Alexandra has been an integral part of TDP’s growth and management since its beginning. She is a founding board member, serving as a board officer since TDP’s inception in 2014. Most recently, she was the Board President in 2022. Alexandra has been involved in Tampa Bay nonprofit work since the 1990’s, working with organizations including The Children’s Home Inc., The Florida Orchestra and the Hillsborough Education Foundation. She is an alumna of the University of South Florida and a longtime resident of Tampa Bay where she has volunteered in many capacities lending her public relations and fundraising skills.
Marli Lutz, MSM
Marli is a native of Pinellas County. She and her husband recently returned home after many years living in Coral Gables. She is an alumna of the University of Florida and the University of Miami where she also worked as Director of Alumni Relations and Development from 2014 – 2018. Most recently, Marli served as the Director of Development for Casa Familia, Inc., a 501(c)(3) dedicated to the development of affordable housing for adults with Intellectual and Developmental Disabilities in Miami-Dade County. In 2011, as Executive Director for CoralGables@HOME, a nonprofit program supporting aging in place, Marli launched the annual Coral Gables Tour of Kitchens fundraiser which still thrives today. She has an extensive history of volunteerism and is currently a member of the North Pinellas Woman’s Club. Marli is a member of the Leadership Pinellas class of 2022 – 2023. She joined The Dysautonomia Project as Director of Development in January 2022.
Cheryl became involved with The Dysautonomia Project in 2015 while a part-time employee at Network People, Nate and Kelly's Information Technology company. As Kelly's health continued to decline and The Dysautonomia Project continued to gain momentum, the board realized the nonprofit needed administrative support to manage the growing organization. To this day, Cheryl continues to work for Network People and also provides administrative and bookkeeping oversite for TDP. Over the years, she has gained an awareness of how life-altering dysautonomia symptoms can be, how much patients struggle and feel helpless, and why education is so critical. Cheryl is deeply passionate about helping fulfill TDP's mission to educate healthcare professionals, patients and the community about dysautonomia, and is personally involved in taking this education into local school districts. She has witnessed first-hand the impact that dysautonomia has had on her precious friend Kelly, and on many other patients she has been blessed to meet. As a result, Cheryl is deeply committed to TDP and helping the organization do whatever it takes to provide hope to those who suffer from autonomic nervous system disorders.
Ashleigh Goforth, MSW
Ashleigh received her Bachelor of Social Work from the University of South Florida in 2017. She then went on to receive her Master of Social Work with a concentration in Social Innovation and Change from the University of Southern California in 2018. As a social worker, Ashleigh believes in being a voice and change agent that helps individuals, organizations and communities thrive. Ashleigh joined TDP as the Development and Events Associate in February 2022. She comes from a local veterans’ nonprofit and brings with her a tremendous passion for nonprofit work, as well as fundraising, grant writing and event planning knowledge. In her free time, Ashleigh enjoys traveling, reading, and watching baseball.
Amy has a passion for education, writing, public speaking and advocating for the chronically ill. Her dream is to be able to bring physical fitness to the senior citizens and chronically ill. Amy became very ill in the summer of 2017. With the encouragement of her friend, Kelly Freeman, she was directed to a physician and was diagnosed with POTS. Along with a 20+ year background in health care (long-term/rehabilitation), Amy has a degree in Health Information Technology, with specialty certifications in risk management, healthcare privacy and security and medical coding and is a Certified Natural Health Consultant and Nutritional Therapist. She ran her own consulting business for many years before accepting the position of VP of Health Information Services at a consultancy in 2014, focusing mainly on compliance, education and informatics. She is currently a proud member of the TDP team and encourages engagement on our social media platforms.
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