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  • Dysautonomia, which includes POTS, has been increasingly diagnosed over the last few years as an independent medical condition, which also coexists with other conditions, including bladder pain syndrome/interstitial cystitis, chronic fatigue syndrome, Ehlers-Danlos syndrome, fibromyalgia syndrome, Gulf War syndrome, mastocytosis and more. However, there has never been a comprehensive volume addressing Dysautonomia diagnosis, pathophysiology and treatment approaches. The Dysautonomia Project is a

    laudable effort to bring the available information together in an organized and easy-to-read fashion.

    The Dysautonomia Project

The Dysautonomia Project Book


$18.95

 

The Dysautonomia Project Book is an easy to read introduction to disorders of the autonomic (automatic) nervous system (ANS). It has been written by physicians & patients for physicians & patients.

This book is in paperback only.

ORDER ON AMAZON




Kelly Freeman & Charles "Randy" Thompson, MD

Kelly Freeman & Charles "Randy" Thompson, MD

Authors

David S. Goldstein, MD, PhD

David S. Goldstein, MD, PhD

Authors

The Dysautonomia Project Book is an easy to read introduction to disorders of the autonomic (automatic) nervous system (ANS). It has been written by physicians & patients for physicians & patients. The book is designed to:

  • Facilitate a better dialogue between doctor and patient
  • Be a helpful reference for physicians and others in the clinic or hospital setting
  • Serve as a core text for the Grand Rounds CME Course

Designed for Better Dialogue

Core chapters are written with patient information on the left and physician information on the right of the book. This layout helps the physician and patient have a more meaningful dialogue. It also helps the patient to prepare well before diagnostic tests and follow up appointments. Academic chapters written by top researchers in ANS disorders and related conditions summarize key findings in recent research.

A Collaborative Effort

This book is a collaborative effort of many volunteer physicians and patients to speed the time to proper assessment and treatment of patients with dysautonomia at the community level.

**Note: Any proceeds from the sale of The Dysautonomia Project Book will be used solely for the purpose of production and printing of educational materials and furthering the mission of The Dysautonomia Project.

A must for your doctor to read.

If you have kids or know anyone with POTS, you need this. I let my doctors read this, and they became educated.

Bryan Daniels

The Dysautonomia Project
5.0
2016-10-12T11:37:25+00:00

Bryan Daniels

If you have kids or know anyone with POTS, you need this. I let my doctors read this, and they became educated.

There is nothing else out there like this book

There is nothing else out there like this book! If you or someone you love has this syndrome, or if you are a health care provider like me, you'll get more out of this book than medical school ever taught on the subject.

jamonty

The Dysautonomia Project
5.0
2016-10-12T11:15:11+00:00

jamonty

There is nothing else out there like this book! If you or someone you love has this syndrome, or if you are a health care provider like me, you'll get more out of this book than medical school ever taught on the subject.

An essential reference on this topic

This book is an essential resource for dysautonomia patients and their physicians. It describes dysautonomia well enough to aid in diagnosis, and also provides guidance on treatment and coping strategies. The format of the book divides each topic into sections written for patients and for physicians, which aids the usefulness of the book for both audiences. While there's a benefit of having many contributors to the book, the book doesn't feel fully integrated and balanced in terms of the topics which are covered and amount of detail for each topic, but readers will be able to focus on topics most relevant to them and connect the dots among these topics by reading the book multiple times.

Camber

The Dysautonomia Project
5.0
2016-10-12T11:11:30+00:00

Camber

This book is an essential resource for dysautonomia patients and their physicians. It describes dysautonomia well enough to aid in diagnosis, and also provides guidance on treatment and coping strategies. The format of the book divides each topic into sections written for patients and for physicians...

Medically accurate and clinically practical. A substantial contribution to the recognition of POTS and other Dysautonomias.

As a medical doctor and a POTS patient I was thrilled to read this book. It is medically accurate with chapters written and edited by some of the leading academic minds in the world who are at the forefront of research and treatment of Dysautonomias and POTS. It was recommended to me by my own POTS Doctor. I ordered and read it immediately. I have given out copies to my other specialists who have felt at a loss on how to best help. This information is not taught in medical school or most residencies, yet is imperative to know. This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too. This book is divided in a unique way. On one side of the page is the text intended for the treating physician. The other side of the page is the same information written in laymen's terms. As a doctor, I found it easy and quick to read. Thank you for publishing this fantastic book!

POTS, MD

The Dysautonomia Project
5.0
2016-10-12T10:15:40+00:00

POTS, MD

As a medical doctor and a POTS patient I was thrilled to read this book. It is medically accurate with chapters written and edited by some of the leading academic minds in the world who are at the forefront of research and treatment of Dysautonomias and POTS. It was recommended to me by my own POTS Doctor...

AMAZING

This book is simply fantastic. I have a connective tissue disorder and POTS (and suspected MCAS). I already knew a lot about dysautonomia and POTS, but this book helped tie everything together a little more. It's written in a way that is easy to understand. As a nurse, I enjoyed reading both the "patient" and "physician" sides. Highly recommend for anyone who has a problem with the autonomic nervous system or suspects a problem. I have shared my book with my PCP and look forward to reviewing some topics with him from the book.

JMurph

The Dysautonomia Project
5.0
2016-10-12T11:10:03+00:00

JMurph

This book is simply fantastic. I have a connective tissue disorder and POTS (and suspected MCAS). I already knew a lot about dysautonomia and POTS, but this book helped tie everything together a little more. It's written in a way that is easy to understand. As a nurse, I enjoyed..

Good information

Just beginning to dive in

R. Ide

The Dysautonomia Project
4.0
2016-10-12T11:41:09+00:00

R. Ide

Just beginning to dive in

Five Stars

learned alot thank you!

Amazon Customer

The Dysautonomia Project
5.0
2016-10-12T11:40:39+00:00

Amazon Customer

learned alot thank you!

Well thought out, thorough educational book

I'm one of the many who took too long (8 years) to get a diagnosis of dysautonomia. If only this book had been around then!! It is thoughtfully organized so that physicians as well as patients and family members can read and understand more about this spectrum of illness. It goes over symptoms and what to look for, testing, the latest treatments, and illnesses that are often seen alongside dysautonomia. Perhaps most importantly -- it teaches us about the autonomic nervous system - so we can actually understand what's happening to our bodies and why we feel how we do. I'm going to be handing these out to my doctors!

beachgirl

The Dysautonomia Project
5.0
2016-10-12T10:38:09+00:00

beachgirl

I'm one of the many who took too long (8 years) to get a diagnosis of dysautonomia. If only this book had been around then!! It is thoughtfully organized so that physicians as well as patients and family members can read and understand more about this spectrum of illness. It goes over symptoms...

Great book to share with your physicians

A must read! Great book to share with your physicians. Very informative and easy to understand.

Gabriela

The Dysautonomia Project
5.0
2016-10-12T11:17:58+00:00

Gabriela

A must read! Great book to share with your physicians. Very informative and easy to understand.

Five Stars

Very helpful with figuring out what your symptoms mean if you have this disorder.

Marc Greenberg

The Dysautonomia Project
5.0
2016-10-12T11:36:40+00:00

Marc Greenberg

Very helpful with figuring out what your symptoms mean if you have this disorder.

Amy D Zurkan

Great book! Very informative. It has great advice on living with dysautonomia and treating it. I'm so glad someone is finally addressing this illness.

Amy D Zurkan

The Dysautonomia Project
5.0
2016-10-12T11:13:33+00:00

Amy D Zurkan

Great book! Very informative. It has great advice on living with dysautonomia and treating it. I'm so glad someone is finally addressing this illness.

Five Stars

Still reading it but appreciate it being written for patients as well as physicians

JeRo

The Dysautonomia Project
5.0
2016-10-12T11:39:38+00:00

JeRo

Still reading it but appreciate it being written for patients as well as physicians

Encouraging Advocacy

After more than 20 years without a diagnosis, it is clear that we need informational books like this one. It encourages a doctor-patient team approach, empowers patients to advocate for themselves, and provides resources for physicians inexperienced with these disorders. The patient pages are readable without being overly simplistic. The provider pages encourage communication with patients. This book is a much-needed resource that should be a required read for all nursing and medical students.

Julie Graves

The Dysautonomia Project
5.0
2016-10-12T10:30:57+00:00

Julie Graves

After more than 20 years without a diagnosis, it is clear that we need informational books like this one. It encourages a doctor-patient team approach, empowers patients to advocate for themselves, and provides resources for physicians inexperienced with these disorders...

THIS BOOK BROUGHT ME SO MUCH VALIDATION!!!

I am simply WOWED having read this book!!! I have been trying for literally YEARS to find out what's wrong with me. I have been misdiagnosed and dismissed by the medical field for far too long. I am still waiting to find the right doctor to diagnose me. I also suspect that I have a mast cell disorder amongst other things. Thinking that in time the complex combinations of some of these things will be decided to be a syndrome all of their own as common as they are seeming to be. This book brought me SO MUCH VALIDATION!!!! There are SO MANY suggestions in here as to what to do that I have already discovered on my own to do. YES!!! I am heading in the right direction after all!!!!

If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!!!
I am SO GLAD I BOUGHT THIS ONE!!!!
I finally feel I'm getting somewhere whether is is yet acknowledged or seen by any medical professional. I can move forward and while I continue on my trek for diagnosis I can at least also continue, on my own, to work towards a treatment. One of the writers of this book encourages being an advocate for yourself. Encourages internet research so as to be the best team player along with your physician team. Encourages finding those groups on facebook and other places on the internet for peer patient support which I am finding is VITAL!!!!

Times are changing. (hopefully lol) No more can docs just take the first 2 to 3 symptoms and work on them one at a time but the whole entirety of what you are dealing with needs to be looked at and evaluated.
I have spent far too many years being told my issues are those of depression or high blood pressure and cholesterol or being given a prescription for something to try and then to come back 2 weeks later.
I DON"T HAVE THE TIME to take out of my life anymore for this. It is far too time consuming and let's face it...is not productive in reaching a diagnosis and treatment.
I am excited. Things are changing.I am hoping to press forward and be a part of the generation that HELPS the medical field learn how to help patients and help them be able to THRIVE in their health conditions instead of just SURVIVING. This book is clearly in line with this. It would be a great idea to purchase this for the docs on your team.
Good health to you readers!!!

Jean M Jones

The Dysautonomia Project
5.0
2016-10-12T10:44:48+00:00

Jean M Jones

I am simply WOWED having read this book!!! I have been trying for literally YEARS to find out what's wrong with me. I have been misdiagnosed and dismissed by the medical field for far too long. I am still waiting to find the right doctor to diagnose me. I also suspect that I have a mast cell disorder amongst other things...

Great book! Well written and easy to understand

Great book! Well written and easy to understand. I recommend this book to anybody that is wanting to learn about Dysautonomia!

K. Wegner

The Dysautonomia Project
5.0
2016-10-12T11:16:38+00:00

K. Wegner

Great book! Well written and easy to understand. I recommend this book to anybody that is wanting to learn about Dysautonomia!

Five Stars

This book is a great way to learn about dysautonomia. Easy to follow.


christymk

The Dysautonomia Project
5.0
2016-10-12T11:40:10+00:00

christymk

This book is a great way to learn about dysautonomia. Easy to follow.

Five Stars

thanks

Roxanne Raines

The Dysautonomia Project
5.0
2016-10-12T11:41:57+00:00

Roxanne Raines

thanks

This is an excellent resource if you or a loved one has or …

This is an excellent resource if you or a loved one has or suspects a diagnosis of dysautonomia (POTS). I just bought two more copies to hand out to physicians, most of whom are not familiar enough with this debilitating condition. Wanted to let everyone know what an excellent resource this is for both patients and doctors. I will add more to my review later.

ebreads

The Dysautonomia Project
5.0
2016-10-12T11:12:53+00:00

ebreads

This is an excellent resource if you or a loved one has or suspects a diagnosis of dysautonomia (POTS). I just bought two more copies to hand out to physicians, most of whom are not familiar enough with this debilitating condition. Wanted to let everyone know what...

Add this resource to your library TODAY!

I purchased this book because a dear friend was diagnosed with POTS, which falls under the Dysautonomia umbrella. I was amazed at the clarity of information contained in the 200+ pages. I found the layout to be very helpful (Patient page with an opposing Physicians page - both covering the same topic). After I read the Patient pages for a general understanding on an issue, I would then read the Physician pages for greater knowledge. Thank you for this forward thinking approach. The content has been invaluable. I highly recommend purchasing this "manual" on Dysautonomia. It is a terrific resource.

Polly J Stannard

The Dysautonomia Project
5.0
2016-10-12T11:12:11+00:00

Polly J Stannard

I purchased this book because a dear friend was diagnosed with POTS, which falls under the Dysautonomia umbrella. I was amazed at the clarity of information contained in the 200+ pages. I found the layout to be very helpful (Patient page with an opposing Physicians...

Very Solid Information!

I've found a lot of good information in this book. I'm suffering from dysautonomia but the cause, in my case, is probably a small fiber neuropathy in my stomach that affects some autonomic nerve. Unfortunately, I didn't cause a treatment for that in this book. Actually, I didn't find any good information about treatments for this case in the medicine literature so far. But I'll keep searching!

I've passed 7 years struggling with this situation, listening from doctor that I was crazy, that I need to go to psychiatrist, to take medications to my mind etc.

So, 2 years ago, I've found a doctor who believed me, listened to me, and we are fighting together. to solve this situation.
Yeap, I'm struggling with this for 9 years!!! For 7 years I'm stuck at home. I'm not able to walk freely, to talk, to move, feeling a lot of electricity throughout my body, and nobody can't explain WHAT is it, WHY and HOW to solve it.

BUT... In this book I've found good information, explaining symptoms I knew that I was feeling, but I didn't know how to explain to people and doctors. And when I talked about that, doctors called me 'crazy'. So you fell very, very ALONE in this journey.

I'm not feeling alone anymore, nor that I have mental issues as doctors used to say (I always felt that my mind was OK, but they just ignored me).

I don't have POTS or any Orthostatic Issues, but if you do, so this book is gonna help you even more. Go forward and buy it! Show these informations to your family, your doctor, even your friends.

I'm from BRAZIL, by the way, if it helps anyone.

Amazon Customer

The Dysautonomia Project
4.0
2016-10-12T11:14:29+00:00

Amazon Customer

I've found a lot of good information in this book. I'm suffering from dysautonomia but the cause, in my case, is probably a small fiber neuropathy in my stomach that affects some autonomic nerve. Unfortunately, I didn't cause a treatment for that in this book...
4.0
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