Dysautonomia, which includes POTS, has been increasingly diagnosed over the last few years as an independent medical condition, which also coexists with other conditions, including bladder pain syndrome/interstitial cystitis, chronic fatigue syndrome, Ehlers-Danlos syndrome, fibromyalgia syndrome, Gulf War syndrome, mastocytosis and more. However, there has never been a comprehensive volume addressing Dysautonomia diagnosis, pathophysiology and treatment approaches. The Dysautonomia Project is a
laudable effort to bring the available information together in an organized and easy-to-read fashion.
The Dysautonomia Project
The Dysautonomia Project Book
The Dysautonomia Project Book is an easy to read introduction to disorders of the autonomic (automatic) nervous system (ANS). It has been written by physicians & patients for physicians & patients.
This book is in paperback only.
Kelly Freeman & Charles "Randy" Thompson, MD
David S. Goldstein, MD, PhD
- Facilitate a better dialogue between doctor and patient
- Be a helpful reference for physicians and others in the clinic or hospital setting
- Serve as a core text for the Grand Rounds CME Course
Designed for Better Dialogue
Core chapters are written with patient information on the left and physician information on the right of the book. This layout helps the physician and patient have a more meaningful dialogue. It also helps the patient to prepare well before diagnostic tests and follow up appointments. Academic chapters written by top researchers in ANS disorders and related conditions summarize key findings in recent research.
A Collaborative Effort
This book is a collaborative effort of many volunteer physicians and patients to speed the time to proper assessment and treatment of patients with dysautonomia at the community level.
**Note: Any proceeds from the sale of The Dysautonomia Project Book will be used solely for the purpose of production and printing of educational materials and furthering the mission of The Dysautonomia Project.
Amy D Zurkan
Amy D Zurkan
THIS BOOK BROUGHT ME SO MUCH VALIDATION!!!
If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!!!
I am SO GLAD I BOUGHT THIS ONE!!!!
I finally feel I'm getting somewhere whether is is yet acknowledged or seen by any medical professional. I can move forward and while I continue on my trek for diagnosis I can at least also continue, on my own, to work towards a treatment. One of the writers of this book encourages being an advocate for yourself. Encourages internet research so as to be the best team player along with your physician team. Encourages finding those groups on facebook and other places on the internet for peer patient support which I am finding is VITAL!!!!
Times are changing. (hopefully lol) No more can docs just take the first 2 to 3 symptoms and work on them one at a time but the whole entirety of what you are dealing with needs to be looked at and evaluated.
I have spent far too many years being told my issues are those of depression or high blood pressure and cholesterol or being given a prescription for something to try and then to come back 2 weeks later.
I DON"T HAVE THE TIME to take out of my life anymore for this. It is far too time consuming and let's face it...is not productive in reaching a diagnosis and treatment.
I am excited. Things are changing.I am hoping to press forward and be a part of the generation that HELPS the medical field learn how to help patients and help them be able to THRIVE in their health conditions instead of just SURVIVING. This book is clearly in line with this. It would be a great idea to purchase this for the docs on your team.
Good health to you readers!!!
Jean M Jones
A must for your doctor to read.
Medically accurate and clinically practical. A substantial contribution to the recognition of POTS and other Dysautonomias.
Well thought out, thorough educational book
Buy 2 or more and pass them on!!
There is nothing else out there like this book
Very imformative and helpful
Great book to share with your physicians
Very Solid Information!
I've passed 7 years struggling with this situation, listening from doctor that I was crazy, that I need to go to psychiatrist, to take medications to my mind etc.
So, 2 years ago, I've found a doctor who believed me, listened to me, and we are fighting together. to solve this situation.
Yeap, I'm struggling with this for 9 years!!! For 7 years I'm stuck at home. I'm not able to walk freely, to talk, to move, feeling a lot of electricity throughout my body, and nobody can't explain WHAT is it, WHY and HOW to solve it.
BUT... In this book I've found good information, explaining symptoms I knew that I was feeling, but I didn't know how to explain to people and doctors. And when I talked about that, doctors called me 'crazy'. So you fell very, very ALONE in this journey.
I'm not feeling alone anymore, nor that I have mental issues as doctors used to say (I always felt that my mind was OK, but they just ignored me).
I don't have POTS or any Orthostatic Issues, but if you do, so this book is gonna help you even more. Go forward and buy it! Show these informations to your family, your doctor, even your friends.
I'm from BRAZIL, by the way, if it helps anyone.
Add this resource to your library TODAY!
Polly J Stannard
Great book! Well written and easy to understand