“If you want to go fast, go alone. If you want to go far, go together.”

-African Proverb

Resources from The Dysautonomia Project Book

Dysautonomia Awareness Organizations

These are organizations with which TDP works or collaborates 

American Autonomic Society (AAS) 

Dysautonomia Support Network (DSN) 

Dysautonomia Information Network (DINET) 

Standing up to POTS 

Dysautonomia Louisiana 


Australian POTS Foundation

Hope for Defeating Dysautonomia

MSA Coalition

POTS and Dysautonomia Japan

*If you would like your group added to this list, please send an email to 

Facebook Groups

These are private Facebook groups and have not been vetted by TDP. Regarding medical advice found in support groups: TDP recognizes the value of dysautonomia support groups for patients dealing with this chronic illness. Before following medical advice or treatment options presented in these groups, patients should discuss them with their provider. (The number of followers may vary.)

The Dysautonomia Support Group   19k 

Dysautonomia Support Group  785 

Autonomic Dysfunction Group  4.4k 

Dysautonomia: All We Know so Far  9.3k 

Dysautonomia and Disney 2.1k 

Autonomic Dysfunction Support Group   701 

Dysautonomia Connection   17k 

Athletes with Dysautonomia  1.1k 

POTS Syndrome Dysautonomia Group  13k 

Dysautonomia Support Network—SE Regional Community 981 

Dysautonomia Support Network—Caregivers Community  900 

Autoimmune with Autonomic Dysfunction (Autoimmune Dysautonomia)  3.4k 

Michigan Friends with Dysautonomia and POTS   1.1k 

POTS/Dysautonomia with Depression/Anxiety Support Group  1.9k 

POTs EDS Dysautonomia Awareness Education and Support  5.7k 

People with Dysautonomia and Ehlers Danlos Syndromes Support  3.2k 

POTS and Dysautonomia Support  1.1k 

Teens with Dysautonomia  499 

Dysautonomia: Postural Orthostatic Tachycardia Syndrome (POTS) Group   5.3k 

Dysautonomia Support Group for Age 50+   187 

POTS (Dysautonomia) and Invisible Illness WORLDWIDE   4k 

Dysautonomia Support Network—Global Community   1.4k 

Other Relevant Organizations 

The Ehlers-Danlos Society 

Naughty Little Mast Cells 

The Mast Cell Disease Society

TDP Online Education

Free online education is at the heart of our mission. As TDP grows, so does our library of online articles and video courses for providers and patients. 

TDP Patient Education Center

This resource includes articles and videos discussing topics that fall under these categories:  



Co-existing Conditions 

Managing Dysautonomias 


TDP Provider Courses

Providers can access courses taught by leading experts in autonomic medicine and apply that knowledge to diagnosing and treating patients with autonomic disorders. Patients have access to information about diagnosing, treating, and living with autonomic disorders, which empowers them to manage and advocate for their own healthcare.  This includes a one-hour patient education course.  

Patient Support and Assistance


Most schools have a system in place to help students who have special needs by creating an Individualized Education Program (IEP). It may be helpful if students with dysautonomia create an IEP with their school administration for handling schoolwork and other school activities when symptoms interfere with school. 

To learn more about creating an IEP visit 


Depending on your dysautonomia you may or may not be able to work. If you are able to work, it is helpful to think through special accommodations you may need to help you be successful in your work. Some with more severe symptoms may require many accommodations while others may not require any at all. It is helpful to discuss with your doctor and also discuss with your employer. 

To learn about reasonable accommodations in the workplace visit 


To learn more about creating an IEP visit 


Applying for Disability or Financially Assistance 

The process of applying for disability or financial assistance can seem overwhelming. It is often helpful to have a friend or family member help when beginning the application process. Two keys to completing the applications are very helpful: 

  1. Make sure to complete every question on the application in full. If an answer is left blank, it is easy for the assisting organization to deny the claim.
  2. Give specific and detailed examples of the need for assistance.

For example, instead of saying, “needs help walking.” Clarify with specifics such as, “I use a seat cane when walking short distances of 50 ft. or less and I use a wheelchair that is pushed by a family member when needing to go 100 ft or more.” 

In some cases, the initial application is denied. We encourage individuals who need assistance to respectfully appeal the initial decision and include more specific examples which demonstrate the true need for assistance. 


National Financial Resource Directory 

To learn more about creating an IEP visit 


Suicide and Crisis Lifeline 

Dial: 988 


Crisis Center of Tampa Bay 

Dial 211


Suicide Prevention UK

Patient Clinical Trials Opportunities is a place to learn about clinical studies from around the world. 

Electrolyte Supplements

Banana Bag Oral Solutions 

Liquid IV 


Normalyte – Use code DYSAUTO30 for 30% off all purchases! 

Nunn Tablets 

Vitassium (SaltStick) 


Join the Vitassium Club – a savings program that offers a 20% discount 

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The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

"Excellent book, on many levels, it helped with understanding links with gastroparesis and hypermobility amongst many other things."

"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

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