Managing Dysautonomias

Doctor In Consultation With Female Patient In Office


Dysautonomia (dis-auto-NO-mia) is a term used to describe any disorder of the autonomic nervous system (ANS). This article covers a broad range of topics including symptoms, types of dyaustonomias, who is affected, and treatments

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African American female psychologist conducts an appointment with a patient in the office. mental

Recently Diagnosed Dysautonomia Patients

Whether you’re relieved to finally have a diagnosis or you’re struggling to accept an autonomic disorder diagnosis, the most important thing you can do is continue moving forward in treating and managing your symptoms.

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Portrait of a confident female doctor

GI Symptoms, MCAS, and Dysautonomia

Not enough is known about MCAS. However, it may be one of the more important medical findings of our time. In a follow up interview, Dr. Matthew Hamilton shares that there are many theories about the basic mechanisms of MCA that may contribute to GI symptoms. This is especially important for dysautonomia patients who have also been diagnosed with MCAS.

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Stay Healthy – Stay In The House

Top 10 Non Pharmacological Treatments

Several non-pharmacological treatments are used to help patients with dysautonomia. Although these treatments do not involve medicine, patients should discuss the use of such therapies with their providers as part of the treatment plan.

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Dysautonomia: Chronic Illness, Depression, and Suicide – How to get help and talk to loved ones

Chronic illness is hard to live with. By definition, a chronic illness is an ongoing, long-term disease or illness that does not typically have a cure. When your life has been upended by illness, it’s not uncommon to experience bouts of sadness and even depression. The Cleveland Clinic* reports that an estimated one-third of the people suffering from chronic illness will experience depression.

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Flip the Clinic: Managing Your Own Health

Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.

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Pediatric Dysautonomia Patients

This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.

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Salt and Dysautonomia

There are several nonpharmacological treatments available to help manage symptoms of dysautonomia. One common treatment is an increase in salt intake.

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Tracking Your Symptoms

Dysautonomia patients must be more informed and engaged in managing their health care with their providers. Tracking your symptoms is an important part of this process.

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The Undiagnosed Patient

Dysautonomia may be one of the most often overlooked and misdiagnosed conditions of all time, making the goal of getting a correct diagnosis the first battle for the patient and family.

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Pediatric Dysautonomias

Pediatric onset of autonomic nervous system disorders is very rare. These are also known as genetic or congenital autonomic nervous system disorders.

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The Tilt Table Test

The tilt table test was once considered to be the “gold standard” of diagnosing dysautonomias. This article explains more about the test and what to expect.

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What is the Autonomic Nervous System?

In this video Dr. Goldstein compares the classic diagram of the autonomic nervous system with an updated analogy which is easy to understand. He also shows a plasticized human section of autonomic nerves.

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Ill woman working at home at desk

“I don’t want it to be Dys!”

Have you been sick for a while and trying to figure out what’s wrong? Are you worried that you may have dysautonomia? Have you just received a diagnosis that you’re struggling to accept? If so, this article is for you.

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Ordering medications

Top 20 Dysautonomia Pharmacological Treatments

Several drug treatments are used for autonomic nervous system disorders. Some of them are powerful or can produce harmful side effects. Patients should take medications only under the supervision of a provider with expertise and experience in the treatment of dysautonomia.

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Long-Covid Autonomic Dysfunction

Do you know someone who had COVID-19 who has not fully recovered? Do they have one or more of the symptoms listed in this article? If so, they may have recovered from COVID-19 but are suffering with Long-COVID Autonomic Dysfunction.

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Medical team with protective face mask to prevent infection with covid19

COVID Vaccine Statement

At this point there are no indications the COVID-19 vaccine recommendations should be altered for people with POTS or other autonomic disorders.

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The Dysautonomia Universe

Dysautonomia is not one diagnosis but is a constellation of diagnoses that fall somewhere on the spectrum we call, “The Dysautonomia Universe.”  The dysautonomia universe categorizes dysautonomias according to age group.

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Why Are Dysautonomias Hard?

In this video Dr. Goldstein explains why autonomic medicine is not well understood in medicine today and addresses important aspects of autonomic medicine which are unique from other subspecialties.

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How the Autonomic Nervous System Works

The nervous system of the body is by far the least understood of all body systems. It is made up of an overwhelmingly complex network of neurons electrically charged and dynamically changed by a vast number of chemical messengers produced in places all over the body. 

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Medical advice

The ANS and Chemical Messengers

One of the most powerful chemical messengers of the autonomic nervous system (ANS) is adrenaline, also known in scientific communities as epinephrine. When called upon, this formidable chemical courses throughout the body via the bloodstream.

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Get a Book

The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

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"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

"Great book with clear format for both patient and doctor. Lots of information, easy to understand."