POTS: Postural Orthostatic Tachycardia Syndrome
POTS is the most common autonomic nervous system disorder and an under-recognized health condition that affects teens and adults.
June 2, 2023
POTS is the most common autonomic nervous system disorder and an under-recognized health condition that affects teens and adults.
Dysautonomia (dis-auto-NO-mia) is a term used to describe any disorder of the autonomic nervous system (ANS). This article covers a broad range of topics including symptoms, types of dyaustonomias, who is affected, and treatments
Whether you’re relieved to finally have a diagnosis or you’re struggling to accept an autonomic disorder diagnosis, the most important thing you can do is continue moving forward in treating and managing your symptoms.
Not enough is known about MCAS. However, it may be one of the more important medical findings of our time. In a follow up interview, Dr. Matthew Hamilton shares that there are many theories about the basic mechanisms of MCA that may contribute to GI symptoms. This is especially important for dysautonomia patients who have also been diagnosed with MCAS.
This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.
Autonomic dysfunction can occur at any age: pediatric, adult, or geriatric. Teen and adult onsets of dysautonomias are considered to be disorders of orthostatic intolerance.
The orthostatic vitals test is used to evaluate the body’s response to a change in position. It examines changes in your heart rate and blood pressure when you are resting, sitting, and standing.
This is a time like no other. Since 2014, The Dysautonomia Project (TDP) has worked to create hope for those with autonomic nervous system disorders through education of patients, providers, and communities.
Living with dysautonomia for any length of time means knowing the ups and downs of finding treatments that work as you work with your provider to manage your care.
Dysautonomia may be one of the most often overlooked and misdiagnosed conditions of all time, making the goal of getting a correct diagnosis the first battle for the patient and family.
Pediatric onset of autonomic nervous system disorders is very rare. These are also known as genetic or congenital autonomic nervous system disorders.
In patients 50 years or older, autonomic disorders typically reflect a neurodegenerative disease which means the nerves are gradually losing their ability to work.
Have you been sick for a while and trying to figure out what’s wrong? Are you worried that you may have dysautonomia? Have you just received a diagnosis that you’re struggling to accept? If so, this article is for you.
Do you know someone who had COVID-19 who has not fully recovered? Do they have one or more of the symptoms listed in this article? If so, they may have recovered from COVID-19 but are suffering with Long-COVID Autonomic Dysfunction.
Dr. Glen A. Cook Jr., M.D. gives a patient education seminar on dysautonomia at Largo Medical Center.
Dr. Sandroni discusses many elements of managing POTS patients including: Orthostatic Intolerance, Tilt Table Testing, the important role of hydration and salt as well as a discussion about using IV fluids.
In this video Dr. Raj discusses how to manage reflex and situational syncope. He also explains what to say to patients after they experience fainting.
In this video Dr. Guzman discusses Ehlers Danlos Syndrome (EDS), POTS and Mast Cell Activation Syndrome (MCAS), three coexisting conditions that are sometimes seen together in a segment of the POTS population.
In this video Dr. Peltier discusses POTS and other disorders commonly associated with POTS including small fiber neuropathies, Sjogren syndrome, B12 deficiency, mast cell disorders and others.
In this video, rehabilitation of young POTS patients is explained including key elements of successful rehabilitation.
In this video, Dr. Vernino discusses the relationship between autoimmunity and autonomic failure.
In this video Dr. Raj discusses names used to describe fainting and the basic physiology behind the faint. He also discusses the importance of recognizing the difference between reflex faints and other potentially life-threatening conditions.
Dr. Cook discusses his experience in seeing patients with various forms of dysautonomia in the clinic and autonomic laboratory. He emphasizes the importance of understanding the interdisciplinary nature of autonomic dysfunction.
In this video Dr. David Goldstein describes how you can access the free textbook on Autonomic Medicine which accompanies the course. He also shares tips for making the most out of using the online text.
In this video Dr. Goldstein presents the genetic and hereditary nature of most dysautonomias which occur in the early pediatric years. He also touches on types of autonomic disorder that may occur in adolescents.
Dysautonomia is not one diagnosis but is a constellation of diagnoses that fall somewhere on the spectrum we call, “The Dysautonomia Universe.” The dysautonomia universe categorizes dysautonomias according to age group.
In this video Dr. Goldstein explains why autonomic medicine is not well understood in medicine today and addresses important aspects of autonomic medicine which are unique from other subspecialties.
The nervous system of the body is by far the least understood of all body systems. It is made up of an overwhelmingly complex network of neurons electrically charged and dynamically changed by a vast number of chemical messengers produced in places all over the body.
Dear family member or friend, If the person you care about has been diagnosed with a form of dysautonomia (e.g., POTS, orthostatic hypotension, among others),
One of the most powerful chemical messengers of the autonomic nervous system (ANS) is adrenaline, also known in scientific communities as epinephrine. When called upon, this formidable chemical courses throughout the body via the bloodstream.
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The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge.
