TDP Events
Upcoming Events:
UNDER THE UMBRELLA GALA
Plan to join us Saturday, October 5th at the brand-new Crown Mercedes dealership in Pinellas Park for the UNDER THE UMBRELLA GALA.
Co-Chairs Kevin and Angela Hawkins and their committee have been hard at work to bring TDP's annual fundraiser to new heights! You won't want to miss it!
For more information, you can access the event website through the link below!
For all inquiries, please email: dysgala@gmail.com
Past Events:
A Night of Pure Magic with the Orlando Magic
The Dysautonomia Project hosted a Night of Pure Magic on April, 5, 2019 during the last Orlando Magic home game of the regular season. Our TDP team members Cheryl Faber and Jennifer Walsh, along with co-founder, Kelly Freeman are seen here sharing information and The Dysautonomia Project "swag" with the crowd.
POTS Pi Day 2019
On Sunday, March 10, 2019 we hosted the 3rd annual POTS Pi Day 5K, in memory of Christina Tournant, to raise awareness of dysautonomia and POTS. Thank you to everyone who supported this event and joined us in our mission to educate physicians, patients and the community about this autonomic disorder. A special Thank You to Tava Wilson and Tanya Repka for their continued dedication to TDP and the POTS Pi Day 5k.
THANK YOU SPONSORS! We appreciate you!
Banana Bag Oral Solution
Better Byrd
Busch Gardens
Chick-fil-A Largo
Frida's Bakery
Grillo’s Pickles
Jacob Pierce Photography
Jordan’s Skinny Mixes
Joto’s Pizza
Largo Medical Center
Mahoney Dermatology Specialists
Maple Street Biscuit Company
Muscati-VanLandingham Group at Morgan Stanley
Network People
Normalyte
Orange Theory Fitness
Orlando Magic
Osceola High School
Premier Dance Academy
Ready Set Yo!
Salon Swank
Seminole HS NHS
Solutions Insurance
St. Pete Bagel Company
St. Pete Running Company
SunStar
Tampa Bay Rays Baseball Foundation
The Original Crabby Bill’s
Tom Haight
Treisi Jewelry
Village Inn
WaWa
WFLA swim club
2019 Donor Appreciation Soiree
On Friday, January 25, 2019 The Dysautonomia Project welcomed a handful of donors at our Donor Appreciation Soiree.
This wonderful event was held at the home of one of our Board Members who actually was the architect for this home. The theme of the event was "Architecting Hope" as we hope to Architect Hope through Education.
The President of the Board, Nate Freeman, spoke about Architecting Hope and an exciting project coming soon with the American Autonomic Society.
Stay tuned for more information on this project!
The 6:15 Party November 15th, 2018 at Carlouel Yacht Club
Join us at The 6:15 Party on Thursday, November 15th, 2018 at Carlouel Yacht Club, and enjoy casual dining, dancing, live auction, and music provided by Public Option!
Our party’s name serves as a reminder of our mission to change the 6 year average time to diagnose Dysautonomia, to just 15 minutes.
We have so much to celebrate! Come Kick off your shoes and dance for those who can’t on November 15th, 2018! We hope you will consider participating as a 6:15 Party guest and/or sponsor! Let’s continue our mission to turn 6 years into 15 minutes!
THANK YOU SPONSORS! We appreciate you!
Crown Cars
Network People
Judy and Bob Cottrell
Karen Crown
Tampa Bay Trust
Brown & Brown Insurance
Polly Jester Stannard
B.J. and Don Russell
Ruth P. Stone
Cynthia and Carl von dem Bussche
Ann and Carlton Ward
Valerie Ayers
Ellen Blakely
Cassie and Allen Braswell
Kimberly and Dennis Briggs
Bette and Bill Crown
Julie and Ron Featherstone
Kim and Ray Ferrara
Beth and Tom Goodgame
Sally and David Hemerick
Jean Ann Hughes
Susie and Robert Jinks
Alexandra and Jonathan Key
Shirley Long
Lynn and Tom Matter
Linda and Stewart Turley
CK Advertising
John Skicewicz and Debra McMillen
Val and Jeff Anderson
JoAnna and Michael Andriola
Elizabeth and Mike Coachman
Aleta and Fred Fisher
Jeanie Hanna
Fleur Lion Cachet
Patti Mulock
Susan and Eric Smith
2019 Education Weekend with Dr. Glenn A. Cook Jr., M.D.
TDP is proud to have partnered with Largo Medical Center in presenting, renowned Autonomic Disorders Specialist, Dr. Glen Cook, who provided presentations for local doctors, patients and families.
On September 14, 2018, Dr. Cook presented a CME lecture on the autonomic nervous system (ANS) to physicians, residents, nurse practitioners, and physician assistants at Largo Medical Center and presented to physicians at the Florida Osteopathic Medical Association Conference in Tampa the next morning. Dr. Cook then gave a rare two-hour presentation and Q & A session with patients at Largo Medical Center. Some traveled from as far away as Montana and Virginia to attend.
Both the CME lecture and patient education seminar were recorded and are available on The Dysautonomia Project's YouTube channel for access to all. You can access this through the link below.
Through your support, TDP can continue to connect leading specialists, doctors, and patients - giving hope through education.
Dr. Cook CME Lecture
Dr. Cook Patient Education Seminar
POTS Pi Day 5k 2018
On March 10, 2018, we hosted the 2nd annual POTS Pi Day 5K, in memory of Christina Tournant, to raise awareness of dysautonomia and POTS. Thank you to everyone who supported this event and joined us in our mission to educate physicians, patients and the community about this autonomic disorder. A special Thank You to Tava Wilson for her continued dedication to TDP and the POTS Pi Day 5k, Emily Anne for her creative talent and endless support, and Shelby Bates for her incredible fundraising efforts.
THANK YOU SPONSORS! We appreciate you!
Banana Bag
Body Electric Yoga
Chris and Roy Simrell family
Dairy Queen/Jon and Diann Boeche
doTerra /Tracy Dylong
Dunkin Donuts
Florida Center for Gastroenterology
Fox Run Floral
Frida's Bakery
GNC Bardmoor
Insoft and Hurst Orthodontics
Jacob Pierce Photography
Janie Beane Florist
JK Flowers
Largo Medical Center
Lilly Pulitzer/Carol Miller
Mahoney Dermatology Specialists
Normalyte
Osceola High School
Pinellas Park HS Key Club
Publix
Radiance Med Spa
Renew IV Wellness
Rodin & Fields/Natalie Drewes
Salon Swank
Salon West
Seminole HS NHS
St. Pete Bagel Company
Success By Design
SunStar
Tampa Bay Rays Baseball Foundation
Tom Haight
Treisi Jewelry
Village Inn
WaWa
Weathercheck
WFLA swim club
WEDU Be More Awards 2018
On February 23, 2018, we had the opportunity to attend the WEDU Be More Awards ceremony to honor TDP board member Lisa Rooker, who was a finalist for the “Be More Involved/Mason Dixon Award for Volunteerism.” This award is bestowed upon the individual, family or group that has lent a unique voice to bring awareness, credence, support, or action to an issue or cause. TDP nominated Lisa for this prestigious award, and thanks to the votes of many community members, she was recognized as one of 6 finalists from many, many nonprofits throughout the entire Bay Area. While the award went to another nominee, the fact that Lisa was named a finalist out of approximately 25 original contestants is testimony to her amazing dedication to TDP and the patients who suffer.
Hillsborough County School Nurses
In early August 2017, we had the amazing opportunity to present on POTS to over 300 Hillsborough County School nurses!
WEDU's Be More Awards
In 2016, we were a finalist for WEDU's Be More Awards! Thanks to all of you, we are getting recognized in our own community for fulfilling our mission! THANK YOU!
The 6:15 Party
Join us at The 6:15 Party on Thursday, November 9th, 2017 at Carlouel Yacht Club, and enjoy casual dining, dancing, live auction, and music provided by Public Option!
Our party’s name serves as a reminder of our mission to change the 6 year average time to diagnose Dysautonomia, to just 15 minutes.
We have so much to celebrate! Come Kick off your shoes and dance for those who can’t on November 9th, 2017! We hope you will consider participating as a 6:15 Party guest and/or sponsor! Let’s continue our mission to turn 6 years into 15 minutes!
Get A Clue
The Board game "CLUE" came to life on October 3, 2015 as Colonel Mustard, played by Board Member Kirk Blank, took the stage at duPont Publishing Headquarters and welcomed several hundred guests. The event's success was no mystery!
41st Annual Sun-Coast Pediatric Conference
Dr. Jamie Decker and Dr. Dennis Hart presented on POTS! We were able to provide resources to every physician in attendance (approx. 300) to further our mission of educating physicians about Dysautonomia. Between two doctors, they are seeing 20 patients a week and gathering a tremendous amount of knowledge in how to treat symptoms of Dysautonomia in pediatric cases.
POTS Pi Day 5k 2017
In March 2017, we hosted the POTS Pi Day 5k in Memory of Christina Tournant. Thank you to Tava Wilson for putting together such a successful event, and for bringing so many people together for Dysautonomia/POTS!
UT Nurse Presentation
On Tuesday, November 28, 2017, our Board Members will be presenting on POTS and dysautonomia to the University of Tampa Nursing program!
Just another way we are fulfilling our mission to educate physicians, patients and communities about dysautonomia!
American Autonomic Society Conference at The Wyndham Grand in Clearwater Beach, FL
November 1-4 2017 - This weekend-long conference will include a diverse population of doctors including: Autonomic Specialists, Family Practice Physicians, General Neurologists, and so many more. Many topics will be covered throughout this conference, and we are looking forward to learning more about Autonomic Failure, Pediatric Autonomic Disorder, Postural Tachycardia Syndrome, Genetics Autonomic Disorder, Parkinson Disease, and Multiple System Atrophy (American Autonomic Society, 2017)!
Our Mission
To educate physicians, patients and communities about dysautonomia.
Join the fight in reducing the time to diagnosis from 6 years to 15 minutes!