Managing Dysautonomias

Flip the Clinic: Managing Your Own Health

Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.

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Dysautonomias

Pediatric Dysautonomia Patients

This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.

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Managing Dysautonomias

Preparing for Your Medical Appointments

Chronic illness, especially dysautonomia, can leave you feeling like your life is out of your control. But there are things you can control. Preparing for your medical appointments is one of them.

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Get a Book

The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

"Excellent book, on many levels, it helped with understanding links with gastroparesis and hypermobility amongst many other things."

"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

"Great book with clear format for both patient and doctor. Lots of information, easy to understand."