Flip the Clinic: Managing Your Own Health
Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.
Pediatric Dysautonomia Patients
This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.
Teen and Adult Onset Dysautonomias: Disorders of Orthostatic Intolerance
Autonomic dysfunction can occur at any age: pediatric, adult, or geriatric. Teen and adult onsets of dysautonomias are considered to be disorders of orthostatic intolerance.
Active Stand Test: Measuring Your Body’s Response to Changes in Posture
The active stand test is used to evaluate the body’s response to a change in position. It examines changes in your heart rate and blood pressure when you are resting, sitting, and standing.
A Message from Our Founding Director, Kelly Freeman
This is a time like no other. Since 2014, The Dysautonomia Project (TDP) has worked to create hope for those with autonomic nervous system disorders through education of patients, providers, and communities.
Importance of Being Your Own Advocate
Being your own advocate is essential for any patient (or family member) living with dysautonomia.
Orthostatic Intolerance Spectrum: Living with Orthostatic Intolerance
Orthostatic intolerance refers to a person’s inability to remain upright without symptoms. It is a common sign of dysautonomia with multiple symptoms.
Teens and POTS (Postural Orthostatic Tachycardia Syndrome)
POTS is the most common disorder of the autonomic nervous system (ANS) affecting an estimated 1 in 100 teenagers.
Preparing for Your Medical Appointments
Chronic illness, especially dysautonomia, can leave you feeling like your life is out of your control. But there are things you can control. Preparing for your medical appointments is one of them.
