Managing Dysautonomias

Tracking Your Symptoms

Dysautonomia patients must be more informed and engaged in managing their health care with their providers. Tracking your symptoms is an important part of this process.

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The Undiagnosed Patient

Dysautonomia may be one of the most often overlooked and misdiagnosed conditions of all time, making the goal of getting a correct diagnosis the first battle for the patient and family.

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Pediatric Dysautonomias

Pediatric onset of autonomic nervous system disorders is very rare. These are also known as genetic or congenital autonomic nervous system disorders.

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The Tilt Table Test

The tilt table test was once considered to be the “gold standard” of diagnosing dysautonomias. This article explains more about the test and what to expect.

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What is the Autonomic Nervous System?

In this video Dr. Goldstein compares the classic diagram of the autonomic nervous system with an updated analogy which is easy to understand. He also shows a plasticized human section of autonomic nerves.

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Ideas for the Future

Ideas for the Future Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural

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Management of nOH

Management of nOH Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Get a Book

The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

"Excellent book, on many levels, it helped with understanding links with gastroparesis and hypermobility amongst many other things."

"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

"Great book with clear format for both patient and doctor. Lots of information, easy to understand."