Ill woman working at home at desk
Dysautonomias

“I don’t want it to be Dys!”

Have you been sick for a while and trying to figure out what’s wrong? Are you worried that you may have dysautonomia? Have you just received a diagnosis that you’re struggling to accept? If so, this article is for you.

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Ordering medications
Managing Dysautonomias

Top 20 Dysautonomia Pharmacological Treatments

Several drug treatments are used for autonomic nervous system disorders. Some of them are powerful or can produce harmful side effects. Patients should take medications only under the supervision of a provider with expertise and experience in the treatment of dysautonomia.

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Dysautonomias

Long-Covid Autonomic Dysfunction

Do you know someone who had COVID-19 who has not fully recovered? Do they have one or more of the symptoms listed in this article? If so, they may have recovered from COVID-19 but are suffering with Long-COVID Autonomic Dysfunction.

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Medical team with protective face mask to prevent infection with covid19
Managing Dysautonomias

COVID Vaccine Statement

At this point there are no indications the COVID-19 vaccine recommendations should be altered for people with POTS or other autonomic disorders.

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Senior man, research scientist writes notes, lab observations. Male researcher carrying out
Research

Mast Cell Activation Simplified 

Mast Cell Activation Syndrome (MCAS) is the most common form of systemic Mast Cell Disease and is known to cause Dysautonomia in some but not all patients. This article was originally published in 2013.

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Get a Book

The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

"Excellent book, on many levels, it helped with understanding links with gastroparesis and hypermobility amongst many other things."

"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

"Great book with clear format for both patient and doctor. Lots of information, easy to understand."