support at my school
Most schools have a system in place to help students who have special needs by creating an Individualized Education Program (IEP). It may be helpful if students with dysautonomia create an IEP with their school administration for handling school work and other school activities when symptoms interfere with school.
To learn more about creating an IEP visit https://www.parentcenterhub.org/pa12/
support at my job
Depending on your dysautonomia you may or may not be able to work. If you are able to work, it is helpful to think through special accommodations you may need to help you be successful in your work. Some with more severe symptoms may require many accommodations while others may not require any at all. It is helpful to discuss with your doctor and also discuss with your employer.
To learn about reasonable accommodations in the workplace visit https://adata.org/factsheet/reasonable-accommodations-workplace
applying for disability or financial assistance
The process of applying for disability or financial assistance can seem overwhelming. It is often helpful to have a friend or family member help when beginning the application process. Two keys to completing the applications are very helpful:
1. Make sure to complete every question on the application in full. If an answer is left blank it is easy for the assisting organization to deny the claim.
2. Give specific and detailed examples of the need for assistance.
For example instead of saying, “needs help walking.” Clarify with specifics such as, “I use a seat cane when walking short distances of 50 ft. or less and I use a wheelchair that is pushed by a family member when needing to go 100 ft or more.”
In some cases, the initial application is denied. We encourage individuals who need assistance to respectfully appeal the initial decision and include more specific examples which demonstrate the true need for assistance.