Not enough is known about MCAS. However, it may be one of the more important medical findings of our time. In a follow up interview, Dr. Matthew Hamilton shares that there are many theories about the basic mechanisms of MCA that may contribute to GI symptoms. This is especially important for dysautonomia patients who have also been diagnosed with MCAS.
A large number of mast cell activation disorder patients carry a concurrent diagnosis of Dysautonomia, a collection of conditions associated with dysfunction of the Autonomic Nervous System (ANS).
Chronic illness is hard to live with. By definition, a chronic illness is an ongoing, long-term disease or illness that does not typically have a cure. When your life has been upended by illness, it’s not uncommon to experience bouts of sadness and even depression. The Cleveland Clinic* reports that an estimated one-third of the people suffering from chronic illness will experience depression.
Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.
Autonomic dysfunction can occur at any age: pediatric, adult, or geriatric. Teen and adult onsets of dysautonomias are considered to be disorders of orthostatic intolerance.
The orthostatic vitals test is used to evaluate the body’s response to a change in position. It examines changes in your heart rate and blood pressure when you are resting, sitting, and standing.
This is a time like no other. Since 2014, The Dysautonomia Project (TDP) has worked to create hope for those with autonomic nervous system disorders through education of patients, providers, and communities.
Orthostatic intolerance refers to a person’s inability to remain upright without symptoms. It is a common sign of dysautonomia with multiple symptoms.
POTS is the most common disorder of the autonomic nervous system (ANS) affecting an estimated 1 in 100 teenagers.
Several drug treatments are used for autonomic nervous system disorders. Some of them are powerful or can produce harmful side effects. Patients should take medications only under the supervision of a provider with expertise and experience in the treatment of dysautonomia.
Dr. Glen A. Cook Jr., M.D. gives a patient education seminar on dysautonomia at Largo Medical Center.
Dr. Sandroni discusses many elements of managing POTS patients including: Orthostatic Intolerance, Tilt Table Testing, the important role of hydration and salt as well as a discussion about using IV fluids.
In this video Dr. Raj discusses how to manage reflex and situational syncope. He also explains what to say to patients after they experience fainting.
In this video Dr. Guzman discusses Ehlers Danlos Syndrome (EDS), POTS and Mast Cell Activation Syndrome (MCAS), three coexisting conditions that are sometimes seen together in a segment of the POTS population.
In this video Dr. Peltier discusses POTS and other disorders commonly associated with POTS including small fiber neuropathies, Sjogren syndrome, B12 deficiency, mast cell disorders and others.
In this video, rehabilitation of young POTS patients is explained including key elements of successful rehabilitation.
In this video, Dr. Vernino discusses the relationship between autoimmunity and autonomic failure.
In this video Dr. Raj discusses names used to describe fainting and the basic physiology behind the faint. He also discusses the importance of recognizing the difference between reflex faints and other potentially life-threatening conditions.
In this video Dr. David Goldstein describes how you can access the free textbook on Autonomic Medicine which accompanies the course. He also shares tips for making the most out of using the online text.
In this video Dr. Goldstein presents the genetic and hereditary nature of most dysautonomias which occur in the early pediatric years. He also touches on types of autonomic disorder that may occur in adolescents.
The nervous system of the body is by far the least understood of all body systems. It is made up of an overwhelmingly complex network of neurons electrically charged and dynamically changed by a vast number of chemical messengers produced in places all over the body.
POTS is a mind-body disorder. Neurotransmitters such as norepinephrine, dopamine, adrenaline, serotonin and acetylcholine, which help the nervous system to work, are often released abnormally in patients with POTS and can affect the mental state of the POTS patient.
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The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge.