Patient Education Center

JVK Foundation Grant Award

TDP Receives $95,000 Grant from the Juliet Viola Kniffen Foundation! [Clearwater, FL, May 21, 2024] – The Dysautonomia Project (TDP) is proud to announce its

Read More »
Doctor In Consultation With Female Patient In Office

Dysautonomia

Dysautonomia (dis-auto-NO-mia) is a term used to describe any disorder of the autonomic nervous system (ANS). This article covers a broad range of topics including symptoms, types of dysautonomias, who is affected, and treatments

Read More »
African American female psychologist conducts an appointment with a patient in the office. mental

Recently Diagnosed Dysautonomia Patients

Whether you’re relieved to finally have a diagnosis or you’re struggling to accept an autonomic disorder diagnosis, the most important thing you can do is continue moving forward in treating and managing your symptoms.

Read More »
Portrait of a confident female doctor

GI Symptoms, MCAS, and Dysautonomia

Not enough is known about MCAS. However, it may be one of the more important medical findings of our time. In a follow up interview, Dr. Matthew Hamilton shares that there are many theories about the basic mechanisms of MCA that may contribute to GI symptoms. This is especially important for dysautonomia patients who have also been diagnosed with MCAS.

Read More »
Stay Healthy – Stay In The House

Top 10 Non Pharmacological Treatments

Several non-pharmacological treatments are used to help patients with dysautonomia. Although these treatments do not involve medicine, patients should discuss the use of such therapies with their providers as part of the treatment plan.

Read More »

Dysautonomia: Chronic Illness, Depression, and Suicide – How to get help and talk to loved ones

Chronic illness is hard to live with. By definition, a chronic illness is an ongoing, long-term disease or illness that does not typically have a cure. When your life has been upended by illness, it’s not uncommon to experience bouts of sadness and even depression. The Cleveland Clinic* reports that an estimated one-third of the people suffering from chronic illness will experience depression.

Read More »

Flip the Clinic: Managing Your Own Health

Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.

Read More »

Pediatric Dysautonomia Patients

This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.

Read More »

Salt and Dysautonomia

There are several nonpharmacological treatments available to help manage symptoms of dysautonomia. One common treatment is an increase in salt intake.

Read More »

Tracking Your Symptoms

Dysautonomia patients must be more informed and engaged in managing their health care with their providers. Tracking your symptoms is an important part of this process.

Read More »

The Undiagnosed Patient

Dysautonomia may be one of the most often overlooked and misdiagnosed conditions of all time, making the goal of getting a correct diagnosis the first battle for the patient and family.

Read More »

Pediatric Dysautonomias

Pediatric onset of autonomic nervous system disorders is very rare. These are also known as genetic or congenital autonomic nervous system disorders.

Read More »

The Tilt Table Test

The tilt table test was once considered to be the “gold standard” of diagnosing dysautonomias. This article explains more about the test and what to expect.

Read More »

What is the Autonomic Nervous System?

In this video Dr. Goldstein compares the classic diagram of the autonomic nervous system with an updated analogy which is easy to understand. He also shows a plasticized human section of autonomic nerves.

Read More »

Ideas for the Future

Ideas for the Future https://vimeo.com/manage/videos/810619644/5276199d57 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural

Read More »

Management of nOH

Management of nOH https://vimeo.com/manage/videos/810622147/60c41532ff Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Management of POTS: Syncope

Management of POTS: Syncope https://vimeo.com/manage/videos/810596496/de763394df Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural

Read More »

Geriatric Dysautonomias

Geriatric Dysautonomias https://vimeo.com/manage/videos/810597956/8f261fac92 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

Read More »

Adult Dysautonomias Part 1: Syncope

Adult Dysautonomias Part 1: Syncope https://vimeo.com/manage/videos/810618239/2220f16747 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS:

Read More »

The Syndromic Nature of Dysautonomias

The Syndromic Nature of Dysautonomias https://vimeo.com/manage/videos/810222318/becdfefd13 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS:

Read More »

Stress and the Autonomic Nervous System

Stress and the Autonomic Nervous System https://vimeo.com/manage/videos/810179174/3e8fc7d3de Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

Read More »

Introduction to Catecholamines

Introduction to Catecholamines https://vimeo.com/manage/videos/810620028/707a855534 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Biblical Lie Detection

Biblical Lie Detection https://vimeo.com/manage/videos/810208934/25472e3021/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

The Autonomic Nervous System Has Parts

The Autonomic Nervous System Has Parts https://vimeo.com/manage/videos/810209246/99602ef4e1 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

Read More »

Patient Instructions

Patient Instructions https://vimeo.com/manage/videos/810619269/e713a6065c/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

Read More »

Autonomic Lab Requirements

Autonomic Lab Requirements https://vimeo.com/manage/videos/810231589/b69aefce74 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Other Helpful Tests

Other Helpful Tests https://vimeo.com/manage/videos/810616872/4e454ca749/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Thermoregulatory Sweat Test

Thermoregulatory Sweat Test https://vimeo.com/manage/videos/810240891/62d919543a/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Tilt Table Testing

Tilt Table Testing https://vimeo.com/manage/videos/810626843/8c8c517479 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

Read More »

Cardiovascular Adrenergic Function

Cardiovascular Adrenergic Function https://vimeo.com/manage/videos/810627434/3d1355e6ca Recent Articles 27 Nov 2023 Dysautonomias Valsalva 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun

Read More »

Valsalva

Valsalva https://vimeo.com/manage/videos/810241497/e9a73c2ccb Recent Articles 27 Nov 2023 Dysautonomias Valsalva 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

Read More »

Cardiovagal Function

Cardiovagal Function https://vimeo.com/manage/videos/810614911/ec184636fe/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

Read More »

QSART

QSART https://vimeo.com/manage/videos/810235738/b87583793f Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia Syndrome

Read More »
Ill woman working at home at desk

“I don’t want it to be Dys!”

Have you been sick for a while and trying to figure out what’s wrong? Are you worried that you may have dysautonomia? Have you just received a diagnosis that you’re struggling to accept? If so, this article is for you.

Read More »
Ordering medications

Top 20 Dysautonomia Pharmacological Treatments

Several drug treatments are used for autonomic nervous system disorders. Some of them are powerful or can produce harmful side effects. Patients should take medications only under the supervision of a provider with expertise and experience in the treatment of dysautonomia.

Read More »

Long-Covid Autonomic Dysfunction

Do you know someone who had COVID-19 who has not fully recovered? Do they have one or more of the symptoms listed in this article? If so, they may have recovered from COVID-19 but are suffering with Long-COVID Autonomic Dysfunction.

Read More »
Medical team with protective face mask to prevent infection with covid19

COVID Vaccine Statement

At this point there are no indications the COVID-19 vaccine recommendations should be altered for people with POTS or other autonomic disorders.

Read More »

The Dysautonomia Universe

Dysautonomia is not one diagnosis but is a constellation of diagnoses that fall somewhere on the spectrum we call, “The Dysautonomia Universe.”  The dysautonomia universe categorizes dysautonomias according to age group.

Read More »

Why Are Dysautonomias Hard?

In this video Dr. Goldstein explains why autonomic medicine is not well understood in medicine today and addresses important aspects of autonomic medicine which are unique from other subspecialties.

Read More »

How the Autonomic Nervous System Works

The nervous system of the body is by far the least understood of all body systems. It is made up of an overwhelmingly complex network of neurons electrically charged and dynamically changed by a vast number of chemical messengers produced in places all over the body. 

Read More »
Medical advice

The ANS and Chemical Messengers

One of the most powerful chemical messengers of the autonomic nervous system (ANS) is adrenaline, also known in scientific communities as epinephrine. When called upon, this formidable chemical courses throughout the body via the bloodstream.

Read More »

Welcome to our new website.

Some links and features may not work immediately. All links and features will be actively working in the next 24-72 hours. Thank you for your patience.

Get a Book

The Dysautonomia Project book has reached around the world as a much-needed tool for providers, patients or caregivers looking to arm themselves with the power of knowledge. 

"I highly recommend this book to not only patients but physicians as well!"

"This book has helped my doctors feel empowered to treat me and recognize other patients who are similarly affected. It helped educate my own family too."

"If you are like me and have been pushing in hard for many years or maybe not so many years...for a diagnosis and just want more information on Dysautonomia conditions then this is the book for you!"

"Truly amazing book, an insight into Dysautonomia, informative and educational for both the patient, family and clinicians."

"Excellent book, on many levels, it helped with understanding links with gastroparesis and hypermobility amongst many other things."

"Very informative. The side of the page which is meant for medical professionals is still very readable for patients and provides all the useful info. Great if you've just been diagnosed or to take along to show your doctor."

"Great book with clear format for both patient and doctor. Lots of information, easy to understand."