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Dysautonomia

Dysautonomia (dis-auto-NO-mia) is a term used to describe any disorder of the autonomic nervous system (ANS). This article covers a broad range of topics including symptoms, types of dysautonomias, who is affected, and treatments

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Recently Diagnosed Dysautonomia Patients

Whether you’re relieved to finally have a diagnosis or you’re struggling to accept an autonomic disorder diagnosis, the most important thing you can do is continue moving forward in treating and managing your symptoms.

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Portrait of a confident female doctor

GI Symptoms, MCAS, and Dysautonomia

Not enough is known about MCAS. However, it may be one of the more important medical findings of our time. In a follow up interview, Dr. Matthew Hamilton shares that there are many theories about the basic mechanisms of MCA that may contribute to GI symptoms. This is especially important for dysautonomia patients who have also been diagnosed with MCAS.

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Stay Healthy – Stay In The House

Top 10 Non Pharmacological Treatments

Several non-pharmacological treatments are used to help patients with dysautonomia. Although these treatments do not involve medicine, patients should discuss the use of such therapies with their providers as part of the treatment plan.

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Dysautonomia: Chronic Illness, Depression, and Suicide – How to get help and talk to loved ones

Chronic illness is hard to live with. By definition, a chronic illness is an ongoing, long-term disease or illness that does not typically have a cure. When your life has been upended by illness, it’s not uncommon to experience bouts of sadness and even depression. The Cleveland Clinic* reports that an estimated one-third of the people suffering from chronic illness will experience depression.

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Flip the Clinic: Managing Your Own Health

Patients with multi-system disorders of regulation, such as dysautonomias, must advocate for themselves and take responsibility for managing their own health. The concept of “flip the clinic” addresses this need. It is where patients and health care practitioners improve medical care together.

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Pediatric Dysautonomia Patients

This article focuses on pediatric patients and symptoms of chronic orthostatic intolerance and not those of rare congenital pediatric dysautonomias. It identifies steps parents can take to help their children as they seek a diagnosis and treatment.

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Salt and Dysautonomia

There are several nonpharmacological treatments available to help manage symptoms of dysautonomia. One common treatment is an increase in salt intake.

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Tracking Your Symptoms

Dysautonomia patients must be more informed and engaged in managing their health care with their providers. Tracking your symptoms is an important part of this process.

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The Undiagnosed Patient

Dysautonomia may be one of the most often overlooked and misdiagnosed conditions of all time, making the goal of getting a correct diagnosis the first battle for the patient and family.

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Pediatric Dysautonomias

Pediatric onset of autonomic nervous system disorders is very rare. These are also known as genetic or congenital autonomic nervous system disorders.

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The Tilt Table Test

The tilt table test was once considered to be the “gold standard” of diagnosing dysautonomias. This article explains more about the test and what to expect.

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What is the Autonomic Nervous System?

In this video Dr. Goldstein compares the classic diagram of the autonomic nervous system with an updated analogy which is easy to understand. He also shows a plasticized human section of autonomic nerves.

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Ideas for the Future

Ideas for the Future https://vimeo.com/manage/videos/810619644/5276199d57 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural

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Management of nOH

Management of nOH https://vimeo.com/manage/videos/810622147/60c41532ff Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Management of POTS: Syncope

Management of POTS: Syncope https://vimeo.com/manage/videos/810596496/de763394df Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural

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Geriatric Dysautonomias

Geriatric Dysautonomias https://vimeo.com/manage/videos/810597956/8f261fac92 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

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Adult Dysautonomias Part 1: Syncope

Adult Dysautonomias Part 1: Syncope https://vimeo.com/manage/videos/810618239/2220f16747 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS:

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The Syndromic Nature of Dysautonomias

The Syndromic Nature of Dysautonomias https://vimeo.com/manage/videos/810222318/becdfefd13 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS:

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Stress and the Autonomic Nervous System

Stress and the Autonomic Nervous System https://vimeo.com/manage/videos/810179174/3e8fc7d3de Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

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Introduction to Catecholamines

Introduction to Catecholamines https://vimeo.com/manage/videos/810620028/707a855534 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Biblical Lie Detection

Biblical Lie Detection https://vimeo.com/manage/videos/810208934/25472e3021/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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The Autonomic Nervous System Has Parts

The Autonomic Nervous System Has Parts https://vimeo.com/manage/videos/810209246/99602ef4e1 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

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Patient Instructions

Patient Instructions https://vimeo.com/manage/videos/810619269/e713a6065c/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

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Autonomic Lab Requirements

Autonomic Lab Requirements https://vimeo.com/manage/videos/810231589/b69aefce74 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Other Helpful Tests

Other Helpful Tests https://vimeo.com/manage/videos/810616872/4e454ca749/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Thermoregulatory Sweat Test

Thermoregulatory Sweat Test https://vimeo.com/manage/videos/810240891/62d919543a/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Tilt Table Testing

Tilt Table Testing https://vimeo.com/manage/videos/810626843/8c8c517479 Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic

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Cardiovascular Adrenergic Function

Cardiovascular Adrenergic Function https://vimeo.com/manage/videos/810627434/3d1355e6ca Recent Articles 27 Nov 2023 Dysautonomias Valsalva 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun

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Valsalva

Valsalva https://vimeo.com/manage/videos/810241497/e9a73c2ccb Recent Articles 27 Nov 2023 Dysautonomias Valsalva 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias

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Cardiovagal Function

Cardiovagal Function https://vimeo.com/manage/videos/810614911/ec184636fe/ Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia

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QSART

QSART https://vimeo.com/manage/videos/810235738/b87583793f Recent Articles 31 Jul 2023 Provider Video Library Overview of the Autonomic Reflex Screening 02 Jun 2023 Dysautonomias POTS: Postural Orthostatic Tachycardia Syndrome

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Ill woman working at home at desk

“I don’t want it to be Dys!”

Have you been sick for a while and trying to figure out what’s wrong? Are you worried that you may have dysautonomia? Have you just received a diagnosis that you’re struggling to accept? If so, this article is for you.

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Ordering medications

Top 20 Dysautonomia Pharmacological Treatments

Several drug treatments are used for autonomic nervous system disorders. Some of them are powerful or can produce harmful side effects. Patients should take medications only under the supervision of a provider with expertise and experience in the treatment of dysautonomia.

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Long-Covid Autonomic Dysfunction

Do you know someone who had COVID-19 who has not fully recovered? Do they have one or more of the symptoms listed in this article? If so, they may have recovered from COVID-19 but are suffering with Long-COVID Autonomic Dysfunction.

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Medical team with protective face mask to prevent infection with covid19

COVID Vaccine Statement

At this point there are no indications the COVID-19 vaccine recommendations should be altered for people with POTS or other autonomic disorders.

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The Dysautonomia Universe

Dysautonomia is not one diagnosis but is a constellation of diagnoses that fall somewhere on the spectrum we call, “The Dysautonomia Universe.”  The dysautonomia universe categorizes dysautonomias according to age group.

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Why Are Dysautonomias Hard?

In this video Dr. Goldstein explains why autonomic medicine is not well understood in medicine today and addresses important aspects of autonomic medicine which are unique from other subspecialties.

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How the Autonomic Nervous System Works

The nervous system of the body is by far the least understood of all body systems. It is made up of an overwhelmingly complex network of neurons electrically charged and dynamically changed by a vast number of chemical messengers produced in places all over the body. 

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Medical advice

The ANS and Chemical Messengers

One of the most powerful chemical messengers of the autonomic nervous system (ANS) is adrenaline, also known in scientific communities as epinephrine. When called upon, this formidable chemical courses throughout the body via the bloodstream.

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